I don’t know why it started— I could trace it back to being the eldest daughter, or being a woman, or add some of my trauma sprinkled in there … but when I was in my early adulthood and I found agency in my own capacity and it became everything.
I didn’t realize it but slowly my hope started to stand on my own agency.
I led organizations, I was a leader in my church, I tried to be everything to everyone, and for a while it felt really good.
It felt like, if I could work hard enough, or be good enough, it would all offer me enough hope to keep me going.
And then motherhood hit. I was pregnant back to back for 7 years and in that time I still strived to be everything. The greatest friend, leader, wife, mother, and even went to school for two years in that time.
My proficiency and accomplishments were my whole hope world view, and worse still I thought it was making God proud.
I thought consistently overriding my own body, and being a “servant” was what God wanted. Worse still, I thought my life was bearing fruit. But things typically go really well for a while when you never say no. People like leaders who never say no.
And then I got MS last fall. A total shock. And after being diagnosed I fell into the only way I knew how, which was to throw all my agency at the disease.
I’ve spent a lot of the last months reading every book I could find on MS, or suffering theology, healing, naturopathy— late night google searches, I was insatiable for answers.
And friends, this Spring we found out my disease is progressing. All my religious activity, striving, learning, flexing my agency, it didn’t work.
But a soft undercurrent of all my striving since day 1 of my diagnosis ( and frankly throughout my whole life with Jesus) has been the ever pursuing loving presence of God.
He would love me during my agency phase, always with the same refrain— that I am already loved and enough.
Or through this diagnosis I would hear His voice whispering to my heart that “this disease isn’t your fault, and you don’t have to fix it.”
Before MS “fixing it” was what I thought this whole life was about.
I thought God put me here in this broken world so that I could be fixed and then fix all the brokenness.
But in the depths of my physical exhaustion on days where I literally couldn’t move, or form a clear thought, or my body didn’t work right…
I felt the quiet whisper of God say, He has never loved me more and that His love never moves or changes. It’s the same always whether I am accomplishing much or absolutely nothing.
God has always been whispering His love for me, regardless of my accomplishments my whole walk with Him. I just never found myself at a point in my life where I couldn’t rely on my own strength to believe Him.
John Eldredge describes our hearts being split into three parts. The first part is filled by our daily menial tasks, the second with deeper hopes, desires, cares for loved ones, and the third, well thats where our desire for God lives.
Deep in our hearts, in our being, that third part is where Jesus fills, and there lies our God image.
And the hope in my own agency, after having it all be stripped away, has made me realize why life with Jesus is so sacred. Jesus offers a hope in His love that dwells deep in our hearts and can never be taken away.
This type of love was what my heart was longing for all along. A loving presence that is always available to me, holding me up.
And living in that kind of hope has made me more honest. Because I don’t have to pretend anymore. My life is now slowly being built on a love that is immovable, eternal.
That means I don’t have to say I am grateful for my MS, because let me tell you friends I am not.
It also means I don’t have to put on a religious face and say that I’m so glad I got MS because I am learning so much. I can still see God in diagnosis without believing He authored it.
I am no longer something to fix, I am a cherished daughter that God loves.
MS is helping me unlearn.
I am unlearning self sufficiency, and all the other little ways I cling for hope in things that do not last.
And I’m learning that I can rest, like actually rest in this love that I won’t ever fully understand but is there to meet me in my weakest moments — when I can offer nothing.
I’m learning to live from the depths of my heart out instead of from whatever I can grab for hope and trying to stuff it in.
I’m learning that kind of love, in the depths of my being, it really is enough. And I can praise God for that.